Activist Nelson Álvarez, known on social media as El Porfiao, called for assistance this Wednesday to purchase a device for young Ahittana that would enable her to use her ventilator at home during power outages.
Ahittana, a 19-month-old resident of Viñales, Pinar del Río, suffers from West Syndrome, a severe form of infantile epilepsy that keeps her hospitalized and reliant on an electric ventilator.
"The little girl has been medically discharged but cannot return home due to the risk of a power failure," Álvarez stated on Facebook, requesting help to buy a hybrid solar inverter that would allow the ventilator to function during blackouts. "It's the only way she can go home to her family," the activist emphasized.
Álvarez urged those interested in helping to use the accounts 9205959879504109 (CUP) and 9235959873600758 (MLC), and confirm their contributions by calling 52523871. Additionally, he shared the link to an open GoFundMe fundraiser to support the family.
Marielys Pérez, Ahittana's mother, wrote on Facebook last Friday that her daughter had been stable and was nearly ready for medical discharge. "Today she has been semi-sitting and very calm," she noted.
Last March, this mother sought help to obtain a portable artificial ventilator for her nearly two-year-old daughter, who had been admitted to the pediatric hospital in Pinar del Río since November. "My daughter has been on a ventilator since she underwent a tracheostomy and gastrostomy on December 28, and I need it for home use. Please, help me share this post," she explained on Facebook.
This little girl's case has garnered significant attention because she woke up after being unconscious for 22 days, providing great relief and hope to her family, friends, and other Cubans who have followed her progress on social media.
FAQs About Ahittana's Situation and How to Help
In light of Ahittana's critical condition and the need for a reliable power source for her ventilator, here are some frequently asked questions and answers to provide more information and ways to support her family.
What is West Syndrome?
West Syndrome is a severe form of infantile epilepsy characterized by spasms, developmental delays, and a specific pattern on EEG known as hypsarrhythmia. It often requires comprehensive medical management.
How can I contribute to Ahittana's cause?
Contributions can be made through the bank accounts 9205959879504109 (CUP) and 9235959873600758 (MLC), and verified by calling 52523871. You can also support the family by donating via the GoFundMe link shared by Nelson Álvarez.
Why is a hybrid solar inverter necessary for Ahittana?
The hybrid solar inverter is crucial because it ensures that Ahittana's electric ventilator can continue to operate during power outages, which are frequent in her area. This device would allow her to safely return home from the hospital.